Saturday, June 18, 2016

Summertime

“That was fun and now we’re done!”  Where is the beautiful yellow bus?? 

Just kidding, not really.  My girls miss school.

So what have we been up to? A bit!

Artichokes – yum, it has been three years since we had any.  We each had one (even Becca) – so yummy!!

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Bella had her recital

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She loved it!  I hate how big and grown up she looks!!  :(

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She LOVED watching the other acts – she tried to copy every one!

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Jessi and Daddy cupcake date

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Some awesome food around here:

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Some extra pictures from Crusade:  (Everywhere we went I heard, “Bella!” She is loved!)

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A cool rainbow Jason and I saw above Slugger Field after Bella’s performance.IMG_1481

Alex’s first day of school during the summer enrichment – he LOVES his school!

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Joy being silly after a doctor’s appointment and a picture to document her current obsession with hotdogs!

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My poor son in law was in a car accident!  How very, very grateful we are for seat belts!  He’s fine, but his car was totalled.  We are so thankful you are safe!

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Hanging out – the first thing I do when I get home from work is to change!! Who wants to be in a dress all day?

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Of course, therapy is going strong.

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Brother scared us to death – he would stop what he was doing and winced up his face in pain.  Real crocodile tears would roll down his face.  It would go on for about 15 minutes.  Nothing would comfort him.  Nothing.  He would wake up in the middle of the night.  During the day.  Anytime.  At school.  At home.  At church.  So we grabbed a friend from our old ward and gave Brother a blessing and then headed into the hospital. 

Good news – his shunt is working

Bad news – we have no idea what is wrong.  His pedi said we may never know.  How I wish he could talk!! 

The good thing is it lasted about a week and a half and seems to have stopped.  Crazy!

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Dental work is going full strength around here.  We finally found someone we like (yes, we have been here almost 2 years) and now we have some serious catch up work to do in their mouths

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We went to the ophthalmologist this week for Brother.  It’s our yearly torture session.  I see no point.  It was really quick – have you seen any changes – nope. ok.  We didn’t dilate.  But we filled in the all important paper from the Commonwealth of Kentucky that details his visual impairment.  They need it for school purposes.  But he did tell me one thing I hadn’t thought about.  The next time he is under sedation, he wants to do a thorough eye exam.  He bangs his head a lot.  I mean A LOT.  Like, a lot.  I stopped worrying about it after his last MRI showed it wasn’t doing any damage – how it isn’t is beyond me.  But he said that the trauma of those blows could detach his retina, and then we would lose the teeny bit of vision we do have.  Awesome!  Something to add back to my worry list!

They are doing some construction work on the office next door and he loved checking out the fan!

Because I think he’s adorable when he sleeps!

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Shared this on Facebook this week:

I love Brother's cane! Not only does it help him move through his environment, but it lets others in his world know he's blind. I am always apologizing, "Sorry, he's blind" as he runs into them or grabs someone's leg. Now that we are using the cane all the time, he is even more confident, people look but understand if he touches them by accident and they get out of the way. My constant verbal stream of directions makes sense too, "that's a window, the door is to your right, now there is carpet, there's a doorway to your left, now we need to go to the right." Not to mention my last reason, he's just so cute!!

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My Joy!                                      Feeding her baby

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Sammi discovered Lane Bryant – she LOVES it there!  I told her she had better have money when she gts older  Smile

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Summertime – fancy nails, Starfall and hot dogs, taking naps on the couch, and playing in the water.  Plus some summer flowers I thought were pretty!

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Bella’s trophy from Ballet class – she is so sad it is over!

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and one more big thing we did this summer is join the YMCA.  We are working out and going swimming.  It’s fun!

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