Thursday, April 20, 2017

Orthopedic Appointment

Bella had her one year follow up after knee surgery – a year of walking and jumping – and now jumping!  Who would have thought?

Of course, the poor baby was terrified.  Despite all of my reassurances, she is sure they are going to hurt her.  It’s really quite sad.


A bribe for Gigi’s cupcakes actually work!!  Usually you can promise her the moon, and she doesn’t care!  X-rays for a cupcake – win/win!

Her right knee is fantastic – granted the ugliest scar on the planet, but her knee is stable.

Her left leg, on the other hand, is knock kneed and her patella is “loosey goosey” (that is the technical medical term :) ).  So she continues in therapy and we continue to monitor that knee.  Doctor says if she has to mess with that left knee, she is not going to be a happy camper.

Look at this x-ray!  So proud of that straight leg!!!


Her celebratory cupcake!


I also asked about Miss Joy’s feet and knees.  Love a 2 for 1 doctor’s appointment.  So Joy is getting special braces and we’ll go back for some x-rays to check out those knees.


Sunday, April 09, 2017

Our Getaway Weekend

Jason and I went away for the weekend – wahoo!  We drove to Frankfort (45 minutes away).  We stayed in a hotel.  We slept in!!!  We hiked in Cove Springs.  We ate out.  We explored the State Capitol.  It was a great weekend!!



Because Alex had brain surgery last week, this shape reminded me of a brain MRI  :)


This is a Children’s Memorial Garden.  Truly a sacred place.


We thought the Kentucky State Capitol was so elegant and beautiful!


Later we walked along the river as the sun set.


Not counting adoption trips, it’s been 15 years since we went away by ourselves – we loved it!

Friday, March 31, 2017

Shunt 3.0

At 3:30 this morning, Alex came in and woke me up.  He was upset and fussy. He didn't want to cuddle and go back to sleep. Weird. OK, let's try a shower. Alex loves showers.  He'd be in the water all day if I'd let him. No, he didn't want a shower. That was my first red flag. So we got re-dressed and then he started vomiting. Second flag, and that's it. We got dressed and woke Sammi and Jessi to let them know what was going on.

ER had us in CT and x-ray almost immediately. Doctor was saying even if the CT is clean, you are going downtown, she didn't like how he was presenting.

We got through the CT and x-rays. Three adults to make sure we got the pictures  we needed. I thought something must be up because we kept taking more and more pictures.

We got back to our room and the cute doctor said I don't even need a radiologist to read that CT. His shunt is malfunctioning. They called down and talked with neurosurgery and ordered the ambulance to get us down there.

The paramedics got us to Norton Children's in record time and delivered us to pre-op. Everyone showed up, I answered lots of questions, signed forms, and they took my sweet boy away.

The neurosurgeon said the tubing had come off of the actual device in his head, so the fluid had no where to go.  Its unusual for that to happen at this age, but it can happen. 

So we are here in the hospital all repaired with two new scars on his little body. He's being a champ! Just have to recover some, get some IV antibiotics onboard, and have some repeat tests tomorrow to make sure those ventricules are going down.  So grateful!!

So grateful that everything worked so smoothly today. My baby had a need and they provided the fix.  So grateful he has access to this wonderful medical care that keeps him alive!!!!20170331_10295120170331_103004